Epilepsy is a neurological disorder marked by recurrent, unpredictable seizures caused by abnormal brain activity. These seizures can disrupt a person’s physical, emotional, and social well-being. In low-income countries like Uganda, the challenges of living with epilepsy are often intensified by limited resources, stigma, and lack of awareness. Seizure Support exists to empower Persons With Epilepsy (PWE) to take control of their condition. Our mission is to help them manage seizures effectively, access proper care, and reclaim a normal, dignified life through education, support systems, and a strong sense of community.
At Seizure Support, we believe the most powerful advocates for epilepsy are those who have lived through it. From our founder—who has managed epilepsy for over 15 years—to our dedicated ground team of caregivers, family members, and friends of Persons With Epilepsy, every member of our community carries a personal story. These lived experiences form the heart of our mission. We call it the power of our testimony. It’s this firsthand understanding that drives us to offer compassionate, informed, and authentic support to those walking the same journey, helping others realize they are not alone.
Seizures are unpredictable. Which leads to feelings of anxiety, fear, and loss of control, not knowing when or where the next episode might occur. Seizure Support is my support system.
One of the biggest mistakes someone with Epilepsy can make is to miss their medication. It can be fatal. Seizure Support ensure that not only do I have enough medicine, but its taken on time.
My problem has always been the stigma around my seizures. They are not fully controlled and so they happen often. The network at Seizure Support understands what I go through.
